The death of a loved one. A proposal to prevent complicated grief in palliative home care when assistance ends

Authors

  • Vittorio Lenzo Department of Human, Social and Helth Sciences, University of Cassino and South Latium http://orcid.org/0000-0001-8391-5123
  • Carmen Isgrò Department of Clinical and Experimental Medicine, University of Messina
  • Antonino Germanà Palliative home care services, Sisifo - Consortium of Social Cooperatives, Messina
  • Micol Mazzei Palliative home care services, Sisifo - Consortium of Social Cooperatives, Messina
  • Caterina Testaì Palliative home care services, Sisifo - Consortium of Social Cooperatives, Messina
  • Valeria Verrastro Department of Surgical and Medical Sciences "Magna Garecia", University of Catanzaro http://orcid.org/0000-0002-7674-727X
  • Maria Catena Quattropani Department of Clinical and Experimental Medicine, University of Messina http://orcid.org/0000-0003-0711-6412

DOI:

https://doi.org/10.6092/2612-4033/0110-2191

Abstract

Background: past studies have investigated the relationship between mourning and the quality of life in caregivers who care for terminally ill patients. Recently, complicated pain has been recognized as a risk factor for mental and physical health and severe suffering can interfere with individual functioning and social relationships. Every day, home-based palliative care workers confront health professionals who may develop complicated pain after the patient's death.

Methods: the aim is to identify family members who take care of a high risk of complicated pain and to do this the SISIFO Consortium has developed a psychological intervention program to prevent complicated pain in family caregivers of terminally ill patients.

Results: the common features of the psychological intervention and the future directions of the research were discussed.

Conclusions: the purpose of this document is to illustrate the detailed procedure of the palliative home care service. Furthermore, the results of the psychological intervention program adopted by the service were briefly summarized.

References

American Psychiatric Association (2014). Manuale diagnostico e statistico dei disturbi mentali, quinta edizione. Raffaello Cortina, Milano.

Bonanno, G. (2004). Loss, Trauma, and Human Resilience: Have We Underestimated the Human Capacity to Thrive After Extremely Aversive Events? American Psychologist, 59(1), 20-28. https://doi.org/10.1037/0003-066x.59.1.20

Decreto della Regione Sicilia del 2 dicembre 2015 “Organizzazione e sviluppo della rete locale di cure palliative”.

Freud, S. (1915). Lutto e melanconia. In S. Freud (Ed.), Opere Vol. 8 (pp. 102-118). Torino: Bollati Boringhieri.

Gerber, I., Rusalem, R., Hannon, N., Battin, D., & Arkin, A. (1975). Anticipatory Grief and Aged Widows and Widowers. Journal of Gerontology, 30(2), 225-229. https://doi.org/10.1093/geronj/30.2.225

Lundorff, M., Holmgren, H., Zachariae, R., Farver-Vestergaard, I., & O'Connor, M. (2017). Prevalence of prolonged grief disorder in adult bereavement: A systematic review and meta-analysis. Journal of Affective Disorders, 212, 138-149. https://doi.org/10.1016/j.jad.2017.01.030

Mason, T, & Tofthagen, C. (2018). Complicated Grief of Immediate Family Caregivers. Advances in Nursing Science, 1. https://doi.org/10.1097/ans.0000000000000243

Nielsen, M.K., Neergaard, M.A., Jensen, A.B., Vedsted, P., Bro, F., & Guldin, M.B. (2017). Predictors of Complicated Grief and Depression in Bereaved Caregivers: A Nationwide Prospective Cohort Study. Journal of Pain and Symptom Management, 53 (3), 540-550. https://doi.org/10.1016/j.jpainsymman.2016.09.013

Rugnone, L., Traina, M. L., Lenzo, V., Venturella, N., Ruvolo, G., & Falgares, G. (2017). The Acrobatics of Dying: A Psychodynamic Framework for Palliative Care. World Futures 2017, 73(4-5), 353-363. https://doi.org/10.1080/02604027.2017.1333872

Stroebe, M., Schut, H., & Stroebe, W. (2007). Health outcomes of bereavement. The Lancet, 370 (9603), 1960-1973. https://doi.org/10.1016/s0140-6736(07)61816-9

Thomas, K., Hudson, P., Trauer, T., Remedios, C., & Clarke, D. (2014). Risk Factors for Developing Prolonged Grief During Bereavement in Family Carers of Cancer Patients in Palliative Care: A Longitudinal Study. Journal of Pain and Symptom Management, 47(3), 531-541. https://doi.org/10.1016/j.jpainsymman.2013.05.022

Wittouck, C., Van Autreve, S., De Jaegere, E., Portzky, G., & Van Heeringen, K. (2011). The prevention and treatment of complicated grief: A meta-analysis. Clinical Psychology Review, 31(1), 69-78. https://doi.org/10.1016/j.cpr.2010.09.005

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Published

2020-02-01

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